Thursday, March 20, 2014

Nature vs. Nuture...daughter of anarchy?


This post has taken me forever and a day to write. I couldn't really figure out if I was telling the club's story or my father's story or my story or what, but I guess that's the point, it's all an intertwined mess that can't be separated. I don't know enough about the club to tell it's story specifically, but I do know my story, as a child of a member of the club, and the ramifications that came along with it.

With the wonder that is Netflix I developed a love of binge-watching shows during chemo (I am a voracious reader but 4+ hours in a chair + IV benadryl = limited cognitive abilities).  I've gone through American Horror Story, the first season of Downton Abbey (bastards went and switched over to Amazon Prime so I'm stuck for now), House of Cards, The Walking Dead, Mad Men, Hemlock Grove (OMG!), The Fall, Top of the Lake, and probably more that I can't remember. TV's great, we get to escape for a awhile, to Regency England, to the 60's, to an insane asylum...well, you get my point. Maybe you see yourself in a character or see a snippet that reminds you of something but for the most part...it's fiction, and that's the point (and great for taking your mind off of sitting in a chemo chair and to drown out the older gentleman "singing" next to you).
 
So in bed a couple weeks ago I was searching for something new to watch, which if you have Netflix you know is a feat in and of itself. Came across Sons of Anarchy, which I honestly didn't know a whole lot about (for the longest time I think I assumed it was something akin to Duck Dynasty or Appalachian Outlaws, some pseudo-reality show about hillbillies), and thought oh hell, why not. Well. Here's where fiction and reality cross paths. No, I most regrettably do not have Charlie Hunnam riding up to my house, guns literally and anatomically blazing, (omg, have you seen this buzzfeed?? #11, ummm yeah...Charlie Hunnam Queer as Folk or Cold Mountain days, NO, not even...now, omg, I have dreamt about him) preferably speaking in his native accent. I don't even have Tommy Flanagan with that "Glasgow smile" and gorgeous Scottish brogue lilting around my house (yes, I have a serious British Isles accent thing). What I do have is in my blood.

My father - sperm donor, biological contributor, whatever - was a founding member of a motorcycle gang called the Heathens. They started in Southern California, namely Venice, in the late 60's, spread a couple chapters around and sort of flamed out in the 80's. They have regrouped these days and you can actually find a website they run (www.heathensmf.com), but I would gather to say that it's pretty much just some guys flying colors these days and not much else. And there you go - I was raised knowing what terms like flying colors and ape hangers meant (although much hilarity ensued when I was little and mistakenly called them monkey bars). Instead of the Mayans and the Grim Bastards, I knew who the Vagos and the Mongols were (funny enough, small world story - when my husband and I were house hunting years ago, we walked into one house and my eyes went to the huge flag on the wall. I screeched, "This is a Vagos house?? We can't buy this house." The real estate agent looked at me like I was nuts...and kept more than a few paces away from me after I explained what it all meant). Instead of Opie and Juice and Tig, when I was born I was held by people with names like Turk and Hillbilly and Grinch.



These are my "cousin's" parents...we'll get into their story below.
As I started watching the show, I felt things most people probably don't feel while watching a show - I saw, acted out in front of me, things that I knew a family member had done but could only imagine before. I didn't need to imagine them now. Obviously I've seen all of this portrayed before, but not on a show specifically about a motorcycle gang. Because while the show is fiction, many of the crimes were all too real. The drugs, the guns, the gun running, the beatings, the rapes, the murders...I know that I come from someone who participated and committed most, if not all of those crimes. And I don't quite know what to do with that, because knowing it and seeing it are two very different things.
 


Have no idea who these people are but these were the easiest pictures I could find, the other photo albums are packed away somewhere.
 
Since most of these people are still alive, and I'm borrowing their story through my eyes, I'll use initials to protect the players. You think the show goes overboard? A little dramatic? Too many people interconnected, a touch incestuous in the dealings? Let me give you the rundown of the people in the first picture above. Big B was married to my cousin L when they were very young. They got divorced and Big B was then with M, who had my "cousin" (always called each other cousins but we are not blood related) Little B. Little B and I grew up together, he is 6 months older than I am. Little B was born with fetal alcohol syndrome and was also born to a mother who had on/off periods of being a junkie and a drunk over the years so he had quite an uphill battle. Big B was not around except sporadically, which was more than most. Little B and I grew up and he tried really hard to get through school but it was very difficult for him.

We kept in contact over the years as we were close growing up and our moms were still good friends, but sort of lost track for a couple years. I went to college, the Marines, Little B worked his way through gas stations but did end up becoming a plumber and making a decent life. I went to his wedding, he and his wife came to mine. When my husband and I bought our house he came down and helped fix some old plumbing, helped us install a gas line for the dryer. Then he and his wife decided to move to greener pastures in Denver, cheaper living, more jobs, bought a house they could never afford here. And I thought he had made it. And then their marriage fell apart, and he stupidly followed her and hounded her and probably harassed her, not violently, but the guy she was dating had connections and he didn't let up. He was convicted of stalking and has been serving the past 10 years in prison.

M's sister S was also married to someone in the club. S and Big F had two kids and moved to Vegas to try and get away from the life. Well, they didn't get far because in the early 80's, during some sort of highly volatile argument, likely drug and/or alcohol fueled, Big F shot S and then killed himself, leaving behind two small children, J and C. M found them. I still remember hearing about that, and really, as a 7 year old, I shouldn't have had to know what a murder/suicide was, and their kids should most definitely never had to have lived it. I saw J and C sporadically over the years...J tried really hard to keep clean and stay out of trouble, and other than the occasional teenage scuffle I think he may have, I'm not sure. C however didn't fare quite as well and last I heard, years ago, was dabbling in drugs and prostitution.

Now I'm not saying these stories are specifically because of the club, but there is an aspect of the life and it's all too real.

I can tell you what wasn't real...stacks of cash on the table and professionally decorated houses. Most of us grew up in shitty apartments, hand to mouth, with single or may-as-well-be single mothers.
 
As for me, well, here it is. What would not get a second look or thought these days as far as family dynamics go was pretty traumatic 35 years ago. I was the only kid with a different last name than their parent, and I was only one of two kids in my elementary school class (I went to Catholic school so went to school with pretty much the same 35 kids from 1st-8th grade) raised by a single mom. Add to that the fact that my dad was not just gone but in prison for murder (I remember that he, explaining it to me in a letter, said that he "had gotten angry and hurt someone really bad") made it all the more something to hide. I'm guessing not many kids got letters from Soledad when they were 8. By high school I didn't care so much anymore about the circumstances, I just was dealing with growing up without a dad. Although I was actually a really good, responsible teenager, probably specifically because of what I was raised around (I never drank a drop until college), I was quite guilty of playing the card "well, whatever I do can't be as bad as whatever my parents were doing". My mom knew for years that I would race out to get a tattoo on my 18th birthday because "it was in my blood", and it was. I've loved tattoos since I was little, when only, well, criminals and gang members got them. Drinking in college...eh, wasn't doing anything as bad as my parents had done!

So, just like Jax on his rooftop perch, I often wondered - is it in me? I don't know. I know that I come with a mighty temper than I could have acquired from either parent. I know that motorcycles enthrall me. I know that I've never been afraid to start shit with people, and have been lucky that's it has never blown back on me. Whether that's luck, or because I look scary when I mean it, I don't know. My mom loves to tell the story about Little B's 3rd birthday party when he got a motorized truck. She says most kids would ride around the park smiling and laughing and giggling, but apparently we got in it, started riding roughshod over everything and mad-dogging everyone along the way, not a tooth showing between either of us.

I also know that I've always been an extremely good student, that the most serious infraction I've had is a speeding ticket in 1997, that I put myself through college and went on get my MBA,  that the thought of being in jail terrifies me, I've always had a decent respect for authority,  and the thought of some of those crimes makes me ill. I was lucky in the fact that regardless of whatever issues my mother had, and there were plenty, I was raised in a relatively stable environment given the circumstances, with a strong emphasis on education. I can tell you that I would tell Tara to take those kids out of Charming and go far far away. So who knows...

 
And then Jack went to a birthday party a few weekends ago...and picked this out all by himself. Passed up the soccer balls and dragons and turtles...and picked this. And I said, yep, that's definitely my kid. Uh oh.

 
 

Thursday, March 6, 2014

The most important piece...

After my little breakdown yesterday, as I sat on the couch last night trying to explain to my husband why I was so sad, why it was one of my bad days, he reminded me that I was forgetting the piece of this puzzle that I have held on to from the beginning, one of the first things my doctor said to me. That even though the medical community is based on a platform of statistics, numbers, algorithms, percentages, and calculations because they have to be, I do not. I am not a number or a statistic. This is my story and as tragic and horrible and awful and unfair as some other people's stories are, as similar as they are to my own - those are not my stories. This is my story and right now my story is that I'm fine. I'm okay.  I'm 39 and I'm a mom and a wife and I've been through some crappy stuff. I'm tired and I lose my patience and I try to figure out this mothering thing everyday, because really, if anyone knows the secret to one and three year old crazy I'd be willing to pay. I'm happy and weird and I like to sing loudly in my car...and at home. I'm super-sensitive and I cry easily at many many things. I do not take shit from anyone very easily and my 5'2" self has been known to scare things much larger. Cancer is part of my story, but I will not let it be my whole story. This is MY story - the story of one.

Wednesday, March 5, 2014

Never going to be...



It's reiterated over and over again that after this crap that you will have to figure out a "new normal", you will never be the person you were again...and that's true. So very very true. I will never again be who I was prior to approximately 2 pm on July 13, 2012. But then, isn't that true for everyone, at any life-changing juncture? I will also never be the girl I was in high school again, I will never be the girl I was in college, I will never be the person I was before I got married. I will never be the person I was before I had one child, nor will I be the person I was before I had two children. And that's okay. So much has changed and I'm okay with it for the most part.

What they don't tell you about this "new normal'? The your new normal will involve days of being terrified because your back hurts, even though your back has hurt in different places for the last 20 years. What they don't tell you is that even though both kids and your husband and you have been passing around some sort of cold/crud/allergy/sucky thing for a week now, the cough you have, that they all have, keeps you up at night wondering if it's something else. What they don't tell you is that you will stumble across someone's prayer request on facebook, read the story and have it be almost identical to yours - age, cancer while pregnant, left side, may instead of july 2012, triple negative- yet she is at home in hospice right now after stopping treatments last week because they weren't working for the mets in her brain, and you will spend your afternoon in uncontrollable tears, silently raging at God on Ash Wednesday. That is the new normal that I am not okay with.



 

Sunday, February 23, 2014

A peaceful view...

"We ourselves feel that what we are doing is but a drop in the ocean. But the ocean would be less because of that missing drop." -Mother Theresa



May we all have a joyful week ahead.
 


Thursday, February 20, 2014

Purgatory...

I went through 12 years of Catholic school. I'm sure teachings on this have changed significantly over the years, but in first and second grades, we learned a lot about purgatory, the place between heaven and hell where you went if you weren't quite good enough to get straight into heaven, but certainly were not bad enough to go straight to H-E-L-L. Purgatory housed people who didn't have enough graces (I used to think of it like collecting enough skee ball tickets to get the big prize at Castle Park) or didn't say a perfect Act of Contrition before they died, or maybe you were a baby who had not been baptised and therefore had not committed any sin but had not been cleansed of Original Sin. Whatever the story, you were stuck in no-man's-land until enough people left behind prayed for your soul and you collected enough grace tickets to gain entry into heaven...or you just languished there forever.
 
The aftermath of cancer, after the treatment, at least in the beginning...that's like purgatory.
 
Heaven would be the rest of your life cancer-free, but of course no one knows if that will happen until, well, until they die without having a recurrance. So basically you still live your life in purgatory. I'm sure as the years go on without any problems purgatory transforms into a much more comfortable place. Don't get me wrong - after this crap, even in purgatory most of us are trying to dance more, laugh more, be a little more wild and at times reckless - and get all of the tickets that we can from the damn skee ball machine. Purgatory doesn't have to be boring, but it is at times...I don't know...heavy.
 
Because you know that at any moment the cancer bitch could come up and sucker punch you and steal all of your tickets because SHE wanted the 5000 point prize and the floor drops and down you go...and you find yourself in a doctor's office, being told that the scan doesn't look good.
 
When you join this craptastic club, unless you shut yourself off from everyone, which some days you really want to do, you will see loss. You will have a front seat to shitty outcomes for people you may never have even met in person but care about and cry for and hurt for. You will hear of a bad diagnosis, of mets, and the twisted black tiny portion of your mind that you are ashamed of but that is purely human and natural will sigh and think thank god that's not me. And you will cry silent tears while you are rocking your baby before bed. You will go and sob alone and undetected in the shower and you will dry your eyes and go read to your son before bedtime. And then you will spend the next week rehashing over and over again the thought that this could be you, at any time. But then you will get up and brush yourself off, and put on loud music and dance and sing and keep on swimming and live in purgatory.  
 
In the past six months, in my small 120 or so person facebook group, we have lost one person, one person's mets have spread and the chemo is no longer working so well, one other person has had brain surgery and radiation due to mets and one was just diagnosed with mets today. I'm just angry. Angry that it's still a zero-sum game, angry that all too often someone gets sucker punched and robbed. I'm just angry.

Sunday, February 16, 2014

A couple firsts...

 
 
We have been away for a few days. A couple highlights...
 


Little girl experienced her first snow...
I celebrated my first cancerversary...



And Jack just hung out looking cute...

 

Thursday, February 6, 2014

22 Weeks and Cancer: Breast Cancer is not the "easy" cancer...

22 Weeks and Cancer: Breast Cancer is not the "easy" cancer...: As the 4th was World Cancer Day and many cancer awareness campaigns are being done this month, a few ummm, interesting, ads have shown up.....

Breast Cancer is not the "easy" cancer...

As the 4th was World Cancer Day and many cancer awareness campaigns are being done this month, a few ummm, interesting, ads have shown up...like this one from Pancreatic Cancer Action...
 
 
 
Well, hip hip hooray!! I didn't even know that I won the cancer competition when I was diagnosed, at 37, with Stage 3C cancer, while pregnant!! How silly I was to be concerned, because we all know that everyone with breast cancer lives! It's like having a cold!! Hooray for me!! Phew, I had no idea that I can relax now, without a care in the world for what might happen to me, because I GOT THE EASY CANCER!!
 
Excuse me for a minute but WHAT THE FUCK?? I wish I had breast cancer?? I understand, believe me I do, that pancreatic cancer is no joke and has a very high mortality rate. I completely get that. But maybe you'd like to talk to some of the girls in my facebook group, who are in their 40s and fighting stage 4 breast cancer. Maybe you should talk to the 32 year old mom of two littles that I went to the August retreat with, who is fighting stage 4. Maybe you should talk to me after my 4 rounds of chemo while pregnant and my resultant mastectomy and my 12 rounds of chemo after that and my 33 doses of radiation after that and my constant numbness and pain and tightness that I deal with every single day. Maybe you should talk to me after I dealt with the plastic surgeon who basically insinuated that I was probably going to have a recurrence any day now and really shouldn't bother to look into reconstruction right yet because really, I may not be here long enough to enjoy it.
 
How about I wish there was no cancer? How about no more deaths of any type of cancer? This is not some sick kind of competition, this is something that everyone should be in together. Because with crap like this, we all lose.
 
 


Friday, January 24, 2014

My 39th year...

 
"Oh, Earth, you are too wonderful for anyone to realize you... Does anyone ever realize life while they live it...every, every minute? No, saints and poets maybe, they do some." - Wilder
 
I can guarantee to you that my husband...and Jack...and A-R if she could talk...and the rest of my family and friends would tell you that I am no saint. My high school creative writing teacher, Mrs. Roth, would tell you that I'm no poet. But with all respect to Mr. Wilder, although not a poetic addition (see, I know what's not poetic), I would add "and people who have or have faced life threatening illnesses or situations".
 
 
Google Images
 

 
This crazy beautiful precious life is just funny. Life truly ain't nothing but a funny funny riddle. You spend your youth voraciously coveting additional candles, longing to be older, waiting for the day that your life will "begin!!" "When I'm older I will..." starts innumerable sentences. Somewhere in your 20's, you start feeling time accelerate - not only chronologically, but also across your face, parts of your body, your hair (in my case for sure, I've been going grey since my early 20s). What only years ago was a source of pride - "I'll be 16 six months before you!!" - becomes "Ha Ha, you'll always be six months older than me!" Your 30s come and eventually parts of you start creaking and cracking and you realize holy crap, somehow I've ended up precipitously close to middle age. The music you grew up with starts to be played on "retro" weekends and classic rock stations and the band members are receiving their AARP membership applications. You find yourself going to your 20 year high school reunion, which you can't really understand because you are certain that, even though you have been married for 11 years and have two children, you KNOW you only left college about 5 years ago. But if you are healthy, all of these thoughts are accompanied by the tiny voice in the back of your mind going "but I still have soooo many years ahead, no big deal." And then something comes and smacks you in the face so hard that a punch would feel like a cotton ball, turns your world so upside down that vertigo seems like a gentle ride on a small carousel, that everything you previously knew for certain, everything you knew to be true about this world, is intrinsically forever changed.
 

People who hide their ages, are ashamed of them...I just want to shake them and say "Why can't you see? Why can't you see how very very lucky you are? Those years are family you got to love and sunsets you experienced and places you traveled and children who were able to know you." But I understand. It's truly not something that you can ever comprehend until you live it and I get that. And I mean that - I have been on both sides now - even if you have taken care of someone who has passed, even if you have lost people around you, even if you have lost a piece of your heart when they left. I have lost many people in my life. I have lost people at a young age (both them and me), I have taken care of people that I have lost, I have taken care of someone who at one time held my heart, I have lost chunks of my heart, a rather large chunk of my heart- but I didn't fully understand - I didn't fully ingest, absorb, taste, consume the complete and utter fragility of this life until I got sick. I can see the theoretical thestrals. I wish to God I couldn't, I wish I thought the carriage was still invisibly guided, but I can see them.
 
So this is what a birthday means now.
 

 It means that I had another year to practice at this crazy dance called marriage. It means that maybe to these two beings I will actually be a tangible mother, not a vague memory or scent conjured only by pictures or stories. It means I had another year to try and realize any, some, bits and pieces of my dreams and goals. It means that I have had another chance to continue in this powerful play, to contribute another verse.
 
It means that if someone says, "Oh, you'll always be older than me" I will smile and say, "Yep, isn't that great!?" It means if someone says, "Don't worry, you'll be there one day", that I will gleefully say "Yes, I will, and I can't wait!".
 
Never again will I lament the opportunities, the blessings that the passing of this time has given me. Never again will I fail to celebrate another candle, another 365 days, another 525,600 minutes.
Never again will I spend and waste time as if I had a million years.

I am 39 years old today.

Thursday, January 16, 2014

The thin line between writing about what you know and what you think you know...



Ooooh, this blogging world...thine are but a tricky mistress...
 
A former co-worked posted a link on facebook today that a friend of her's had written. It was about vaccines - very anti-vaccine talking about the medical problems that her son had faced and alleging that it was all related to vaccines. I'm not going to repost it here and I'm not here to debate about vaccines...I happen to have no problem with them, my children are fully vaccinated, and that's my business. I'm not here to debate the medical validity of certain claims or whether people's beliefs are right or wrong. This lady certainly had the right to compose her post, recite her story, talk about what she believes caused all of this, etc. If that was where the story ended, then I wouldn't be writing right now. But her final sentence (and title of the post for that matter) is basically where the whole thing goes haywire - to paraphrase her, she contends that all children who have been vaccinated are injured, that all children who have been vaccinated have some sort of illness - ADHD, asthma, spectrum disorder, allergies, etc etc. - that are a direct result of vaccinations, even if their parents don't want to admit it.
 
OOOOOKKKAAAAYYYYY.
 
I won't even go into the complete and utter fallacy and, what I perceive is delusion, of this statement. What I will say is that's where you lost me. Write about what you, personally, know, not what you think you know. I write about my experience, my cancer, my family. If I hear something from a friend, then I will write about that also, disclosing that it is the opinion of someone else. I enjoy reading other's blogs and their personal experiences, even, and sometimes especially, if they contradict my own opinions or experiences. How on earth can we hope to be convicted in our own beliefs if we do not try to understand the opposite viewpoint? What I do not enjoy is someone presuming to tell me what is going on in my body, in my family, in my personal world.  
 
When you start writing about what you *think* you know, that's when credibility flies out of the window faster than pants off of Anthony Weiner in front of a phone. You turn into the people who troll cancer sites extolling the virtues of hemp oil as the cure-all - you turn into Todd Akin talking about a woman's body closing down production during a rape -  you turn into someone who closely resembles a fanatic.