How Facebook has changed the process of birth and death...

Pre-cancer, I was never one to shy away from death. I wouldn't necessarily say I was morbid, but I wasn't afraid either, at least not of the concept. In another life, I think I would have loved to be some sort of forensic scientist, among many other things. I went to my first funeral when I was four, when my great Pop-Pop, whom I loved dearly, died at 92. Then again the next year when my nana died, and so on and so forth. Needless to say, I've been to many funerals over the years and am quite shocked that there seem to be many people like my husband who had been to only one funeral in his entire life before my uncle's 9 years ago. I've taken care of some severely sick people, and watched a few people close to transitioning.

 

The beginning of this post has been sitting for months. I've come back to it often but just haven't been able to attempt it. But now it seems more appropriate then ever because of the juxtaposition of the last few days.

Last night my sister-in-law posted that my niece was in labor. I woke up this morning to pictures of a beautiful healthy new baby. This is, as most would agree I'm sure, pretty much the norm these days. What you used to hear on the phone after the fact, maybe even passed through a telephone tree or god forbid, in person, is now transported in a matter of seconds with shares and likes and comments. And who doesn't want to see a new baby, know that everything went fine?

But I also woke up to a horrible, heart-wrenching post.

I have a good fb friend, one of the girls in my group. We are the same age (ok, she would emphasize that she's a year younger), we were diagnosed around the same time, same stage, same surgery, almost same treatment plan...same same same. Same smart-assedness. We would often message each other, check in on each other, commiserate and snarkily comment on the bounty of stupidity in the world...her cancer was slightly different and made a reappearance shortly after she was done with radiation, around the same time I was. We got burned together, across country from each other. She started back up on a different chemo, and get this - didn't tell her mother or her boyfriend because she didn't want to upset them. So she's been on chemo for the past year now and we were chatting the day she got her scan results back...everything was clear. Sooo happy. A couple days later I realized I hadn't heard from her and started messaging her. This went on until I asked a fellow group member if she had heard from her - she had not. After some digging we discovered she was in the hospital "having many tests done but would get back to us soon". This week we found out that she had a stroke and had mets to her spinal fluid. The doctors had given her a year. I was devastated. We kept it quiet, from our group, because we knew that's what she was requesting. Early last week, my husband found out the guy he has golfed with every week for the past 7 years or so has terminal kidney cancer. Then Robin Williams died, which was a communal sadness. Then I found out about my friend. Last week was not good.

As I said, I was devastated, and was planning something Halloween themed to send her, as we both also share a strong love of the holiday. This morning, after seeing the new baby, I saw this post - "...is in the hospital in critical condition, unresponsive, intubated, seizure activity..." I'm angry. I'm angry and sad and heartbroken. Some of her friends started a private fb page tonight so people could finally be updated on what's going on, for all intents and purposes it is a virtual waiting room, and 21st century parlour. But instead of what used to be immediate family, or close (at least in proximity) neighbors and friends, everyone who has an internet connection can "watch" someone pass. This is not the first time, I've seen it often. I've seen people, even spouses, give status updates of those dying.  I have been, at least tangentially, privy to the passing of people I don't even know. I still am unsure how I feel about this, it's something difficult to process.  I do know that I am sad. I know that I will pray, which she probably would not appreciate. I know that I will "watch", from 3000 miles away, a friend pass way way too soon. I know that no matter how technology has changed the way in which we receive or share information, it will in no way change the feeling of joy at seeing a new life or feeling of your heart breaking.  

mother's day.

I missed out on Mother's Day 2010 by a few weeks, very heavily pregnant with Jack, developing a lovely case of PUPPS, and just trying to get a few hours sleep a night through the heartburn, so this is my third Mother's Day. And as with everything, its meaning has changed for me. Again, I will NEVER be one of those people who say I'm so happy I got cancer, it changed my life...because, umm, hello, yes, it changed my life but I could do without that, thanks. I will admit it changed my perspective though. Now, don't get me wrong, I would love to get the mixer I've always wanted and promised myself, or maybe the ring I've been coveting for 10 years now, a surprise getaway, or hell, a card and some flowers would be spiffy. Okay, so I still have mortal wants and desires, cancer doesn't make you a saint people, but overall, while some mothers are out there bemoaning their lack of gifts or time to sleep in or breakfast in bed, I am content with the sheer existence of the fact that I'm here and I'm privileged to get to mother these kids. God willing, I get to spend many more mother's days with them, ingesting the fact that I have had another year to know them, for them to know me. When I was still in the "fog of war" right after my diagnosis, when I was walking around with the 1,000 yard stare, one of the first things that scared me terribly, one of the first things that I cried to my husband was not about me per se, but I sat there looking at him, pleading with him, that "I can't leave Jack, he doesn't even know me yet." The tears flow just thinking about that, because I can relive that moment all too clearly in my mind.

While I strongly believe now that I will be around for a while, I am assured of the fact that no one, not any one of us, knows what is going to happen, and that anything could happen at anytime, which is why I am still compelled to write these things. And I'm also here to reflect on and acknowledge the fact that my kids have endured a pretty shitty year themselves. For this, I have more unwarranted guilt than most can imagine.

Baby, I'm so sorry for this past year. I'm sorry that I got sick, I'm sorry that sometimes I was very sad and you didn't understand. I'm glad you didn't understand. I'm sorry that sometimes I got short with you, and it was not your fault - I was scared or sad or worried or tired and sometimes I am ashamed to say I yelled at you louder than I should have, or got mad at you for things I shouldn't have. I'm sorry that I couldn't play with you as much as I wanted, after two surgeries and chemo and radiation and a new baby. I'm sorry we couldn't do all of the cool and fun things that I have "pinned" for us to do. I'm sorry you got cheated out of a normal Halloween and Christmas. I'm sorry for this whole year.

You have been amazing through all of this, and you are a wonder to me. A year that would have been enough change for you just with your sister arriving, when just navigating the world of being 2 is hard enough, you had to deal with all of mama's crap too.

I pray you will not remember much of this year, that you will remember the 95% good and forget the 5% bad that keeps me up at night, and I pray we will never have to relive it. You don't know how much I look forward to watching you grow, how much the thought of you developing into a little man more and more each day gives me reasons... reasons for so many things.

My little girl, who I don't even really know yet, yet have known forever. My little mini-me. You surely did not ask for this, to be subjected to tests and poking and prodding and toxic poisons before you were even born. But you, my amazing, stunning little beauty came through with flying colors. I think all of our doctors knew you would be fine, they were all pulling for both of us so very much. But when I was in the prep room before going to the operating room to have you, the one nurse came in, and she, not knowing us, started listing all of the myriad things that may be wrong with you, insinuating that I should expect them to immediately whisk you away, terrifying me since up until then everyone was completely optimistic that you would likely need no intervention. She reiterated that the entire NICU team would be in the delivery room, waiting to pounce on you. Well, she didn't know you did she? You came out screaming and bright and pink and BIG for 35 weeks and 5 days. And you needed no help at all, as I knew you wouldn't. Everyone in that room was so happy, for both of us. I am so privileged that you chose me, even with all you had to go through to get here. I am so very eager to witness who you become. And also to see you grow into all of that tulle I have for you. :) Again, even though I didn't know it, you were exactly what mama needed.

To both of you, thank you - thank you for choosing me to be your mother, thank you for your resiliency and forgiveness, thank you for letting me into your world, thank you for bringing amazement to my world. No matter what happens, no matter where life takes our little family, always always remember the inimitable words of Christopher Robin:

"Promise me that you will always remember: you are braver than you believe, stronger than you seem and smarter than you think."

Buckling my seat belt....

Well, after surviving the 100 degree weekend... things are going to be moving quickly soon... baby will be here on Oct. 16th, and I will be awaiting a call from the surgeon to schedule surgery soon after delivery, probably about 2 weeks later. This all seemed far away when this whole thing started and now I'm actually having to face it down. I hate to say, but this chemo has really been no big deal... now the "big deal" stuff starts. Which means I'm actually having to start realizing what I'm in for and the feelings that go along with that. More on that later.

 I'd like to really thank Jill at www.babyrabies.com for giving a shout out, and Danielle and Bettina at www.bestforbabes.org for setting up the donation fund.